Our Star

This year we participated in the Walk for children with Apraxia of Speech, technically Addy has Apraxia of speech and limb, but all the same it is a good cause, and we all need a cause right. Well we spend oodles of time and money/ resources on Apraxia and learning about it as well as educating others, I am on the Parent Advisory board at one of the clinics where she is seen, as well as I do family consultations for another clinic to help them adjust to a new diagnosis and things they can do to help their child that has been diagnosed with Apraxia or Sensory Disorders, more often I am contacted to help with Apraxia though, I was super intimidated by it when they asked me, but when it all comes down to it I can't imagine what life would have been like for us if we hadn't had the AMAZING therapists we did that walked me through it all and taught me in my home what to do, and how to manage, the least I can do is meet with others and give Ideas to help them on their journey particularly now as we are evolving from severe to almost being able to completely mainstream without mention of the Apraxia, we could not have done it alone or without the right help and  guidance from excellent therapists and therapies. It is amazing how much is known about the brain and how it works, yet how little is known about apraxia and how to work through it. Not all kids are the same and not all eventually evolve some never find their voice, thankfully our little one is a fighter, she works just as hard or harder then Myself or the therapists which is saying a lot, she never gives up, which is why she has made the progress she has, that and I never give up either, we have hit many bumps and turns and trials with this, but we just stay the course and do what is best for her, and hopefully this will all just be a memory some day. Nationally apraxia is becoming more of an issue and a known diagnosis, the walk we did all of the money raised goes for research to help with finding out more about apraxia. It has only been in our area for two years now. But we were happy to join the group and do our part, We walked as a family with a few additions

Grandma of course is always one of our supporters no matter what we are doing, she is the BEST!

 Dad and the kids, we were not sure how long the walk was going to be so we brought the stroller to ease the woes of the little ones, turned out not to be far, as there were kids walking, but they had games and a silent auction, it was fun, small but fun.

 Our group, grandma, me, Doug, Cousin Bryn who is visiting for the week, Addy our Apraxia Star, and Jimmy bean who is also a star, the hours this kids spends in therapy supporting his sister should be rewarded, he is such a blessing to her and all of us.

 If you want to learn more about apraxia check out apraxia for kids or just google it there is a bit of info out there, or if you want to read a book you can check out my library.LOL We are so thankful for our little Addy her struggles and all, I know they help us all to be a little better and to work a little harder. She is Amazing.